Prayers for a fellow very soon to be cavernous malformation survivor 2013

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Prayers for a fellow very soon to be cavernous malformation survivor 2013

Post by Admin on Sun Sep 15, 2013 7:58 am

2013 2013 2013 As I said in earlier posts, I was told "inoperable" by various Neurosurgeon. One of them even said after I had already been told my cavernoma&nbsp;already bled twice: "In its location, in the brainstem, if it had bled, you would be dead" In fact, i heard him say that to my husband (very bluntly I may add) because i couldnt talk ("if it would of bled, she'd be dead". &nbsp; Later phone calls confirmed that it had indeed bleed twice before. &nbsp;Anyway, what neurologists and neurosurgeons that are not specialized in Cavernous malformation dont know, is that even the tinniest drop of blood in the brainstem can cause symptoms. In fact, just the pressure of the cavernoma filled with blood can cause symptoms! &nbsp;I later found that my local hospital visits and stay were due to a microscopic bleeding that to them was impossible because you know, i'd be dead if it bled Wink <br /><br />Inoperable is usually &nbsp;associated to either a cancer that had spread beyond repair, or location. When it comes to benign tumors, even devastating ones that doesn't&nbsp;spread, like a bleeding&nbsp;cavernoma&nbsp;for example, it is all about the location. &nbsp;In case like mine, being told "inoperable" is often due to the surgeon itself not being able to perform the surgery without either killing you, leaving you with more deficits than before, or simply not knowing that sometimes, some surgeon somewhere knows how. &nbsp;I was sadly shocked to discover that a lot of surgeons dont refer their patients to someone who can perform the surgery. You only have to hope that they wont have to perform emergency surgery on you to save your life when time comes, since they already told you that for them to perform this surgery means complete loss of any quality of life and permanent dependency on other people.<br /><br />When I was told "inoperable due to location", I fully understood, and of course after some research on my own about the brainstem, I agreed! &nbsp;I read so many stories and saw so many videos of very sad outcomes, all from people who had the surgery because it was either surgery or death, most of them not even aware of what happened. &nbsp; I was shocked and amazed when Dr.Spetzler told me he could do the surgery. It was not "inoperable" to him, as "location" is not an issue to him. There is no brain location this man cant touch. He has refused people before; people who risk more with the risky surgery than not doing anything at all because they have not had symptoms, or people that are too far off and would most likely not survive the surgery or simply the surgery wouldnt make them any better anyway.<br /><br />Like i shared in my latest post, going in to have the surgery would of been so much harder without the support of survivors I met a couple of weeks before. There is more , much more , than the 4 of us out there, but they are hard to find!!<br /><br />Thru my <a href="http://www.facebook.com/thatbrainfart" target="_blank">That brain fart </a>facebook page, a beautiful, full of life mother of 3 messaged me and told me her too, was offered a brain surgery by Dr.Spetzler. She told me that even tho she was pretty decided she would go for it, reading my journey and the successful surgery gave her hope and confirmed her choices. It makes me so happy to know that I can be an encouragement to her, as I was so encouraged by my survivors too!! &nbsp;I know that some day, she will encourage someone else too!! <br /><br /><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/--YlbLodZJvk/UW28aiYqheI/AAAAAAAAAp0/-57a7qhEb0g/s1600/marylbreyer.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://1.bp.blogspot.com/--YlbLodZJvk/UW28aiYqheI/AAAAAAAAAp0/-57a7qhEb0g/s1600/marylbreyer.jpg" /></a></div><br />{Mary (middle) with her 2 daughters}<br /><br />Mary is going to Phoenix next week and is <span style="font-family: inherit;">going to have surgery Tuesday, &nbsp;April 23rd. &nbsp;She is going to have brain surgery to removed the Cave</span>rnous Malformation that is located on her Thalamus. &nbsp; Here is a bit about the Thalamus:<br /><br /><br /><h3 id="pd1" style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit; font-size: small;">Thalamus:</span></h3><div style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">The thalamus is a large, dual lobed mass of grey matter buried under the&nbsp;<a href="http://biology.about.com/od/anatomy/a/aa032505a.htm" style="color: #3366cc; cursor: pointer; font-style: inherit; margin: 0px; padding: 0px;">cerebral cortex</a>. It is involved in sensory perception and regulation of motor functions. The thalamus is a&nbsp;<a href="http://biology.about.com/od/anatomy/a/aa042205a.htm" style="color: #3366cc; cursor: pointer; font-style: inherit; margin: 0px; padding: 0px;">limbic system</a>&nbsp;structure and it connects areas of the cerebral cortex that are involved in sensory perception and movement with other parts of the brain and spinal cord that also have a role in sensation and movement. As a regulator of sensory information, the thalamus also controls sleep and awake states of consciousness.</span></div><h3 id="pd2" style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit; font-size: small;">Function:</span></h3><div style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">The thalamus is involved in several functions of the body including:</span><br /><ul style="font-style: inherit; margin: 1.5em 0px; padding: 0px; position: relative; text-decoration: inherit; z-index: 0;"><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Motor Control</span></li><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Receives Auditory, Somatosensory and Visual Sensory Signals</span></li><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Relays Sensory Signals to the&nbsp;<a href="http://biology.about.com/od/anatomy/a/aa032505a.htm" style="color: #3366cc; cursor: pointer; font-style: inherit; margin: 0px; padding: 0px;">Cerebral Cortex</a></span></li><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Controls Sleep and Awake States</span></li></ul></div><h3 id="pd3" style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit; font-size: small;">Location:</span></h3><div><span style="background-color: white; color: #333333; line-height: 24px;">The&nbsp;thalamus&nbsp;is perched on top of the brainstem, near the center of the brain, with nerve fibers projecting out to the&nbsp;cerebral cortex in all directions. The medial surface of the&nbsp;thalamus&nbsp;constitutes the upper part of the lateral wall of the&nbsp;</span><a href="http://en.wikipedia.org/wiki/Third_ventricle" style="background-color: white; background-image: none; color: #0b0080; line-height: 24px; text-decoration: none;" title="Third ventricle">third ventricle</a><span style="background-color: white; color: #333333; line-height: 24px;">,&nbsp;and is connected to the corresponding surface of the opposite&nbsp;thalamus&nbsp;by a flattened gray band, the&nbsp;</span><a href="http://en.wikipedia.org/wiki/Interthalamic_adhesion" style="background-color: white; background-image: none; color: #0b0080; line-height: 24px; text-decoration: none;" title="Interthalamic adhesion">Interthalamic adhesion</a><span style="background-color: white; color: #333333; line-height: 24px;">.&nbsp;</span><span style="background-color: white; color: #333333; line-height: 24px;">&nbsp;</span></div><div><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/-Hi-xYDMPm3c/UW269ieerKI/AAAAAAAAAps/LazYYMwDEeI/s1600/thalamus.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-Hi-xYDMPm3c/UW269ieerKI/AAAAAAAAAps/LazYYMwDEeI/s1600/thalamus.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: left;">I am asking you to pray for her. Its one thing to wake up and realize you are indeed still alive... but it does not stop there! &nbsp;None of us wants to wake up to a life completely changed forever. &nbsp;All of us who chose to go thru the risk of surgery in the hope of a better future know that we are doing so knowing the risks and totally ready to start the lengthy recovery process. The ones who are not simply do not have this surgery. &nbsp;We are ready, but we hope not only will it save our life but will &nbsp;not take away &nbsp;a good quality of life. So pray for Mary to &nbsp;not only have a successful total dissection of her cavernous malformation, but to wake up strong and ready to start the recovery with peace, confidence, but mostly joy and obvious certainty that life as she knew is not only going to get back to normal, but even better with the eternal gratitude that she will never have to worry about this again.&nbsp;</div><div class="separator" style="clear: both; text-align: left;"><br /></div><div class="separator" style="clear: both; text-align: left;">Thank you for your prayers, my friends.&nbsp;</div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: left;"><br /></div><div class="separator" style="clear: both; text-align: left;"><br /></div><div class="separator" style="clear: both; text-align: left;"><br /></div><br> 2013 2013 2013 <br>As I said in earlier posts, I was told "inoperable" by various Neurosurgeon. One of them even said after I had already been told my cavernoma&nbsp;already bled twice: "In its location, in the brainstem, if it had bled, you would be dead" In fact, i heard him say that to my husband (very bluntly I may add) because i couldnt talk ("if it would of bled, she'd be dead". &nbsp; Later phone calls confirmed that it had indeed bleed twice before. &nbsp;Anyway, what neurologists and neurosurgeons that are not specialized in Cavernous malformation dont know, is that even the tinniest drop of blood in the brainstem can cause symptoms. In fact, just the pressure of the cavernoma filled with blood can cause symptoms! &nbsp;I later found that my local hospital visits and stay were due to a microscopic bleeding that to them was impossible because you know, i'd be dead if it bled Wink <br /><br />Inoperable is usually &nbsp;associated to either a cancer that had spread beyond repair, or location. When it comes to benign tumors, even devastating ones that doesn't&nbsp;spread, like a bleeding&nbsp;cavernoma&nbsp;for example, it is all about the location. &nbsp;In case like mine, being told "inoperable" is often due to the surgeon itself not being able to perform the surgery without either killing you, leaving you with more deficits than before, or simply not knowing that sometimes, some surgeon somewhere knows how. &nbsp;I was sadly shocked to discover that a lot of surgeons dont refer their patients to someone who can perform the surgery. You only have to hope that they wont have to perform emergency surgery on you to save your life when time comes, since they already told you that for them to perform this surgery means complete loss of any quality of life and permanent dependency on other people.<br /><br />When I was told "inoperable due to location", I fully understood, and of course after some research on my own about the brainstem, I agreed! &nbsp;I read so many stories and saw so many videos of very sad outcomes, all from people who had the surgery because it was either surgery or death, most of them not even aware of what happened. &nbsp; I was shocked and amazed when Dr.Spetzler told me he could do the surgery. It was not "inoperable" to him, as "location" is not an issue to him. There is no brain location this man cant touch. He has refused people before; people who risk more with the risky surgery than not doing anything at all because they have not had symptoms, or people that are too far off and would most likely not survive the surgery or simply the surgery wouldnt make them any better anyway.<br /><br />Like i shared in my latest post, going in to have the surgery would of been so much harder without the support of survivors I met a couple of weeks before. There is more , much more , than the 4 of us out there, but they are hard to find!!<br /><br />Thru my <a href="http://www.facebook.com/thatbrainfart" target="_blank">That brain fart </a>facebook page, a beautiful, full of life mother of 3 messaged me and told me her too, was offered a brain surgery by Dr.Spetzler. She told me that even tho she was pretty decided she would go for it, reading my journey and the successful surgery gave her hope and confirmed her choices. It makes me so happy to know that I can be an encouragement to her, as I was so encouraged by my survivors too!! &nbsp;I know that some day, she will encourage someone else too!! <br /><br /><div class="separator" style="clear: both; text-align: center;"><a href="http://1.bp.blogspot.com/--YlbLodZJvk/UW28aiYqheI/AAAAAAAAAp0/-57a7qhEb0g/s1600/marylbreyer.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://1.bp.blogspot.com/--YlbLodZJvk/UW28aiYqheI/AAAAAAAAAp0/-57a7qhEb0g/s1600/marylbreyer.jpg" /></a></div><br />{Mary (middle) with her 2 daughters}<br /><br />Mary is going to Phoenix next week and is <span style="font-family: inherit;">going to have surgery Tuesday, &nbsp;April 23rd. &nbsp;She is going to have brain surgery to removed the Cave</span>rnous Malformation that is located on her Thalamus. &nbsp; Here is a bit about the Thalamus:<br /><br /><br /><h3 id="pd1" style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit; font-size: small;">Thalamus:</span></h3><div style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">The thalamus is a large, dual lobed mass of grey matter buried under the&nbsp;<a href="http://biology.about.com/od/anatomy/a/aa032505a.htm" style="color: #3366cc; cursor: pointer; font-style: inherit; margin: 0px; padding: 0px;">cerebral cortex</a>. It is involved in sensory perception and regulation of motor functions. The thalamus is a&nbsp;<a href="http://biology.about.com/od/anatomy/a/aa042205a.htm" style="color: #3366cc; cursor: pointer; font-style: inherit; margin: 0px; padding: 0px;">limbic system</a>&nbsp;structure and it connects areas of the cerebral cortex that are involved in sensory perception and movement with other parts of the brain and spinal cord that also have a role in sensation and movement. As a regulator of sensory information, the thalamus also controls sleep and awake states of consciousness.</span></div><h3 id="pd2" style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit; font-size: small;">Function:</span></h3><div style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">The thalamus is involved in several functions of the body including:</span><br /><ul style="font-style: inherit; margin: 1.5em 0px; padding: 0px; position: relative; text-decoration: inherit; z-index: 0;"><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Motor Control</span></li><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Receives Auditory, Somatosensory and Visual Sensory Signals</span></li><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Relays Sensory Signals to the&nbsp;<a href="http://biology.about.com/od/anatomy/a/aa032505a.htm" style="color: #3366cc; cursor: pointer; font-style: inherit; margin: 0px; padding: 0px;">Cerebral Cortex</a></span></li><li style="font-style: inherit; list-style-type: disc; margin: 0px 0px 0px 18px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit;">Controls Sleep and Awake States</span></li></ul></div><h3 id="pd3" style="background-color: white; color: #333333; line-height: 18px; margin: 1.5em 0px; padding: 0px; text-decoration: inherit;"><span style="font-family: inherit; font-size: small;">Location:</span></h3><div><span style="background-color: white; color: #333333; line-height: 24px;">The&nbsp;thalamus&nbsp;is perched on top of the brainstem, near the center of the brain, with nerve fibers projecting out to the&nbsp;cerebral cortex in all directions. The medial surface of the&nbsp;thalamus&nbsp;constitutes the upper part of the lateral wall of the&nbsp;</span><a href="http://en.wikipedia.org/wiki/Third_ventricle" style="background-color: white; background-image: none; color: #0b0080; line-height: 24px; text-decoration: none;" title="Third ventricle">third ventricle</a><span style="background-color: white; color: #333333; line-height: 24px;">,&nbsp;and is connected to the corresponding surface of the opposite&nbsp;thalamus&nbsp;by a flattened gray band, the&nbsp;</span><a href="http://en.wikipedia.org/wiki/Interthalamic_adhesion" style="background-color: white; background-image: none; color: #0b0080; line-height: 24px; text-decoration: none;" title="Interthalamic adhesion">Interthalamic adhesion</a><span style="background-color: white; color: #333333; line-height: 24px;">.&nbsp;</span><span style="background-color: white; color: #333333; line-height: 24px;">&nbsp;</span></div><div><br /></div><div class="separator" style="clear: both; text-align: center;"><a href="http://2.bp.blogspot.com/-Hi-xYDMPm3c/UW269ieerKI/AAAAAAAAAps/LazYYMwDEeI/s1600/thalamus.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://2.bp.blogspot.com/-Hi-xYDMPm3c/UW269ieerKI/AAAAAAAAAps/LazYYMwDEeI/s1600/thalamus.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: left;">I am asking you to pray for her. Its one thing to wake up and realize you are indeed still alive... but it does not stop there! &nbsp;None of us wants to wake up to a life completely changed forever. &nbsp;All of us who chose to go thru the risk of surgery in the hope of a better future know that we are doing so knowing the risks and totally ready to start the lengthy recovery process. The ones who are not simply do not have this surgery. &nbsp;We are ready, but we hope not only will it save our life but will &nbsp;not take away &nbsp;a good quality of life. So pray for Mary to &nbsp;not only have a successful total dissection of her cavernous malformation, but to wake up strong and ready to start the recovery with peace, confidence, but mostly joy and obvious certainty that life as she knew is not only going to get back to normal, but even better with the eternal gratitude that she will never have to worry about this again.&nbsp;</div><div class="separator" style="clear: both; text-align: left;"><br /></div><div class="separator" style="clear: both; text-align: left;">Thank you for your prayers, my friends.&nbsp;</div><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: left;"><br /></div><div class="separator" style="clear: both; text-align: left;"><br /></div><div class="separator" style="clear: both; text-align: left;"><br /></div><br>2013 2013 2013 <br> <a href="http://www.matrixar.com/" title="Matrix ">المصفوفة : أجمل الخلفيات والصور</a>

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